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Saturday, 7 November 2020

IgA Nephropathy revisited


As many readers of this blog will be aware, my wonderful brother Dave gave me one of his kidneys back in June 2013. He quite literally saved my life. Prior to my transplant I wrote a few posts about igA Nephropathy which can be found by clicking on the links below.



Since receiving Dave's kidney I've been on anti-rejection drugs - immunosuppressants - to ensure the kidney is not rejected. The dosage fluctuated a lot to start with to find the optimum level of medication. 
Things went along swimmingly well but in the last six months or so (coinciding roughly with my enforced four and a half month Covid-19 lock down as a person at severe risk) I realised that things were getting a little bumpy and I've had quite a few trips back and forth to the Oxford Churchill Renal Unit.

I've pasted a few of the key results below, alongside explanations of what the tests measure. There are loads more results, but they all confirm the same downward trend in performance. Simply put, I'm in need of another transplant.


Creatinine is the best routine blood test for measuring how well kidneys are working. It's produced by muscles and put out by the kidneys. The 'normal' range for Creatinine for healthy people is between 60-110. Immediately prior to my 2013 transplant mine reached 445. It's now 544.


Urea is a small molecule produced from protein and put out by the kidneys. The normal range for Urea for healthy people is between 2.5 and 7.0. Prior to my 2013 transplant mine reached 29.4. It's currently 31.6



eGFR (Estimated Glomerular Filtration Rate) is a test of kidney function. It uses the result of the Creatinine test with age and sex to estimate an approximate percentage kidney function. The normal range is above 60%. Prior to my 2013 transplant mine sank to 12%. It's now a disappointing 9%. 



Haemoglobin is the red stuff in blood. It fills red blood cells and carries oxygen around the body Normal is slightly higher in men than women. Men's results should typically be in the range 130-180. The kidneys produce a substance called erythropoietin (EPO) which stimulates the bone marrow to produce red blood cells. Loss of EPO production is usual in patients with advanced kidney disease, and may be severe. Loss of EPO production is a major cause of anaemia in renal failure Treatment with artificial EPO has been a huge advance for patients with renal failure.

Prior to my transplant in 2013 my Hb had dropped to 87 but with EPO treatment it rose prior to transplant to the giddy height of 108. I've now been on EPO for a few months, but my latest result is 92. 

On each of the above charts you'll see an image of my sister Meg, as I took screen grabs of the results whilst on Messenger with her. Back in 2013 she had offered one of her kidneys for my transplant along with my brothers Dave and Gwyn. Quite amazingly she has stepped up again, and volunteered one of her kidneys. In the last few months she has been back and forth to Oxford to be tested to see if she's still a suitable donor.


You cannot begin to imagine how this makes me feel.


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Thursday, 5 November 2020

Remembrance Sunday


Almost without fail, every year I watch Remembrance Day from London. Disappointingly, it looks like this has been scaled right back this year.












Monday, 27 April 2020

TGO Challenge 2019: DAY 10: Braemar & the Fife Arms


The Fife Arms has been a traditional watering hole for the TGO Challenge for nigh on forty years. I can recall over twenty years of wild parties, late night sessions (we were all residents, of course...)  and meeting all the characters of the Challenge within those hallowed portals. We all held the old girl in our hearts as a place of warmth and good cheer.

COMPLETELY BY CHANCE, A PICTURE OF THIS YEAR'S TEAM TAKEN IN 2013 IN THE FIFE ARMS

However, over those years she had become more and more worn out, with ownership passing from one coach company to another, each trying to wring as much cash out of the business with as little investment as possible or none at all. In short, if the hotel had been a family pet, the kindest thing would have to put it of of its misery with one last trip to the Vets.

Miraculously for a knackered Highland hotel a shining white knight came over the horizon in the form of a wealthy owner of an art gallery who fell in love with Braemar and the Fife Arms in particular and so once again the Fife had new owners but this time ones who wanted to breathe life into the hotel and the village.

After years of ripping out rock, structural alterations and extensive refurbishment, the Fife Arms had reopened this year. This was our first look. She was mightily impressive. We had tried to book a table for dinner yesterday evening in the Clunie Dining Room but had failed as it was completely full, which was hardly surprising as it was Saturday evening. As luck would have it they did have a table spare for Sunday lunch.

Phil and I snapped it up.

We heard that the Architect and Project Manager - local brothers Ben and Tom Addy - would be giving a talk this evening at the Village Hall about the design, project management and reconstruction of the Fife. Both Phil & I had spent a major part of our working lives in civils, design, project management & construction and so we immediately signed up for it.

Of course, this did mean that we would have to miss the annual gathering at Lochcallater Lodge, which we had missed for a couple of years previously due to our routes not going through Braemar. We did feel incredibly guilty about this but as we tucked in to a fabulous lunch our guilt melted away. We have no shame.

For those not familiar with the Fife Arms I've included some photos I've lifted from the Fife's Facebook pages so that you can get a flavour of the place.




THE FLYING STAG PUBLIC BAR



CLUNIE DINING ROOM


CLUNIE DINING ROOM



REAR LOUNGE AREA


THE DRAWING ROOM

Lunch was bloody wonderful. We were on holiday and so went for it. The food was beautiful and the service friendly and efficient. The wines were perfect. So much so that we retired to Elsa's Bar for coffee and then decided to go for cocktails. I know, I know...

ELSA'S BAR

The standard of fit-out and craftsmanship throughout the hotel is superb. For art lovers there's work from Lucian Freud, Bruegel (the Younger), Picasso, Martin Creed, Man Ray and a host of others. You could quite happily spend a few days inside the hotel, before venturing outside to explore the wonders of Deeside. 




THE HEIGHT OF FASHION IN LONDON, APPARENTLY.



ROBERT BURNS FIREPLACE

I've always believed that if you're having a bloody good time, there's absolutely no reason to stop. With this piece of life-guidance to the fore after several cocktails we decided to retire to the Drawing Room for Afternoon Tea. A cornucopia of cakey pleasures were presented, admired and accepted, with lashings of Earl Grey. The afternoon was an absolute delight, sat sitting, as were were, beautifully on our behinds, having our every need and foible attended to by wonderful staff.

I remember wondering if I could just manage one more wafer when Lord Elpus froze.

"Don't move, Al! He can't see us if we don't move."

He'd obviously been watching too much David Bloody Attenborough about lizards or some such nonsense because even though we had turned to stone, the apparition pressing its face to the outside of the window could definitely see us. He caught my eye.


LORD ELPUS, THOROUGHLY AT HOME

I waved the Gent inside to join us for tea. It was great to see Martin, and we generously shared the remains of our cakes and sandwiches. In truth, I could not possibly have squeezed in another crumb. 


You see, all this walking is all very well but you have to learn to enjoy the stopping as well. That's pretty important on a long walk as it adds colour, contrast and recuperation, ingredients often forgotten by those rabidly intent on getting to the next destination. I can thoroughly recommend the Fife Arms Hotel for all three. So much so that we had booked half board for our TGO Challenge the next year - 2020 - until it was cancelled by the gaping maw of Covid-19.

These are desperate times.

THE MAGNIFICENT MARTIN RYE, AT EASE.

At some point in the late afternoon we tumbled from the Fife to buy pies and whisky for the remainder of the walk. Phil was also desperate to visit the crackingly good Braemar Mountain Sports shop.

A quick shower and supper taken in the Flying Stag sent us on our way to the presentation in the Village Hall. It was well attended by seemingly the whole of the village. 

BEN & TOM ADDY


If you click on the link below you should be able to hear the two brothers describe how the project came about and what was entailed to turn an old lady on her last legs to a front line destination hotel. Well worth a listen!



I recall a few beers in the Fife on the way back to our B&B where Phil very proudly produced his latest purchase from the outdoor emporium. A new Afrika Korps cap.







Wednesday, 8 April 2020

TGO Challenge 2019: DAY NINE


DAY NINE: TO BRAEMAR

As forecast, it is pouring with rain. We have twenty miles ahead of us today, the first four trackless, following the streams down hill. We'll be clambering over river bluffs and thick heather. To add to the mix there's potentially a big river crossing and a large wet bog to negotiate.

Quite a few would baulk at the prospect. I've never understood why but Phil & I seem to relish the challenge. We plan the day ahead by breaking it into manageable sections with short stops for food and drink. The first leg is about 6km or an hour and a half, whichever comes first, with subsequent sections of about an hour and a quarter with fifteen minute breaks. 

In the past, our companions very often don't 'get' the first stop after only an hour and a half because they feel as right as ninepence and are eager to get on and get the mileage done. I sense their frustration but I'm afraid I *know* that this system works and works well for Phil & me because we're stopping before we need to rest. If you get to the point when you really need to rest, I believe you're doing it wrong; by the end of a very long day you're going to be knackered and footsore.

There's also the psychological aspect to consider; a very long day broken down into chunks is nowhere near as intimidating as a massive twenty miler across rough country.

We're heading eastwards, always a good idea on the TGO Challenge, with the wind and rain coming from behind. We bounce our way down Caochan Dubh and splash our way across the Upper Upper Feshie dry-shod. Luckily, it's been so dry the previous week that the peat is soaking up the rain rather than shooting it straight into the streams.

The boggy watershed between the River Feshie and the Geldie Burn goes surprisingly well for the same reason. We're cantering along at a good rate and all is remarkably well in our little half worlds - we both wear glasses and so invariably can't see in too much detail what lays ahead in the rain and mist.

We cover the miles in excellent form and as we approach White Bridge in the distance we spot two figures laden down with enormous packs leaving the shelter of the abutment. They appear to be going very slowly. We're both of the same mind. Challengers and probably in need of a  bit of cheering up. In surprisingly short order we're catching them and we realise that they're not in fact huge packs but instead the Challengers are incredibly small with normal size bags...

Could it be?

Gloriously, the answer was a resounding YES! We'd caught up with Lou & Phyllis LaBorwit from Bowie, USA. I say gloriously because these two Challenge Legends are shining examples of Never Ever Giving Up to age or infirmity. They must love each other to pieces because they invariably bicker their way right across Scotland and have been doing so since time began. Lou's first Challenge was in 1994, when he crossed with the magnificent Reverend David Towers. Phyll's first was the following year, with Lou. Back in 1994 Lou had just started retirement. On this Challenge they were 89 and 87 years old and were on their 17th & 16th Challenges. 

I love them both to bits.

ME, LOU & PHYLLIS LABORWIT

We spend half an hour or so together - we need to know that they're doing okay - as we stroll along at their pace catching up with their walking adventures in other parts of the world. Whenever you part with them, you feel the world's a better, kinder place. They're also fun, charming and thoroughly decent. This is to be their last Challenge and so it's wonderful to be able to walk with them for one last time.

HEADING FOR THE LINN OF DEE

Our next objective is Mar Lodge. The Mar Lodge Estate is owned by the National Trust for Scotland and for more years than I can remember have offered shelter to weary Challengers. For the last few years they've provided tea, coffee and biscuits in the Stable Block for a small donation to a charity. As we drop our packs outside and peel off our wet outer layers I'm delighted to notice Ben Dolphin pull up in an NTS vehicle.

BEN DOLPHIN: AT THE TIME, RAMBLERS SCOTLAND PRESIDENT

I first met Ben in 2011 when I organised the 'Wake for the Wild,' a protest against the rapidly increasing  industrialisation of the Highlands caused by the proliferation of wind farms in Scotland's wild places. I called it a wake as I realised even back then there would be no stopping the SNP led Scottish Government's determination to carry through this act of destruction. The protest involved carrying a coffin through the most recent estate to have been bribed by the millions on offer by the energy businesses to the top of the Monadh Liath. There, a wonderful Humanist Celebrant Janet Donnelly read a piece she had prepared over the coffin. 

I make no apology for reproducing Janet's fine eulogy here:

We have come here today because we are the lucky ones. We are lucky because we are the last generation who remember and who have had a chance to be inspired by the Scottish landscape and everything it represents.
Take a moment now to look around you – really take in what you can see because this may be the last time that you will be able to experience that extraordinary feeling that comes when we feel ourselves dwarfed by the magnificence and splendour of the unspoilt wild land around us.
As more and more swathes of the Scottish wilderness are pillaged in the name of sustainability, we mourn their loss as if they were dearly loved friends who taught us valuable lessons in life like the fact that there is more to life than 9 to 5, the daily grind and keeping up with the Jones’s. Up here we permit ourselves to escape just for a little while and allow the splendid isolation to lift our spirits as the realisation dawns that we are indeed just a tiny speck on this incredible planet.
This land is in our hands, in trust for our children and our children’s children and if the politicians and the fat cats have their way, they will look back on our stewardship of the land and hang their heads in shame.
The politicians would have us believe that there is no other way and nobody denies that something must be done to reduce reliance on fossil fuels and nuclear power but we contend that the destruction of the Scottish landscape for ever is not the answer.
The technology is flawed, the sums don’t add up and the claims of large scale onshore wind power station supporters just don’t stand up to scrutiny. Add to that the news that we – the taxpayer have paid nearly a million pounds to the turbine owners to switch them off at times of peak output and we have the makings of a first class farce.
It isn’t funny though – nobody is laughing - unless you count those on their way to the bank. Let’s call a halt to the desecration of our wild landscape and the knee jerk reaction that says ‘do something – anything and we’ll think about the consequences later.
John Muir said: “Keep close to Nature's heart... and break clear away, once in awhile, and climb a mountain or spend a week in the woods. Wash your spirit clean”
I invite you all to look around you now and try to work out where you will go to wash your spirit clean when all of this is gone.
Could you all please raise your glasses – hip flasks – mess tins, whatever you’ve brought with you?
A toast:
To the wilderness – may it continue to inspire us, arouse passion in us and provide sustenance for our souls. May those who seek to destroy it hear the voices of those for whom it is an integral part of life and may it long be regarded as an asset rather than a resource.
The Wilderness.


Ben was right at the front of the protest and helped carry the coffin all the way to the top of the Monadh Liath. Bless, him, he also carried it all the way back down again, along with Chris Townsend and all the supporters who turned out for the protest so that it could be reused at protests throughout Scotland.

BEN CARRYING THE 'WAKE FOR THE WILD' COFFIN WITH JJ, DENIS AND ME, IN 2011

The protest was covered by the Times (and a couple of Scottish newspapers) with a magnificent photograph and a good write up. Two German and French Television companies were also there to record the proceedings. Unsurprisingly the 28Gate BBC didn't want to touch it. They're still rabidly pro-wind and virtually the official outlet for outfits like Greenpeace and WWF. It will doubtless continue to be so until it is finally broken up and sold off. It won't be a moment too soon.


CLICK TO ENLARGE


Ben has an excellent website, Benvironment, well worth exploring. He became the massively popular President of Ramblers Scotland and works hard on their behalf. Amongst his many activities he spends summers as a Ranger at Mar Lodge and writes for Walk Highlands. Visit his site. It's a mine of wonderful blogs, vlogs, pictures and everything to do with the Scottish Outdoors. He really is an inspirational fellow. It was a pleasure to catch up with him again.

Of course, the refreshments were enjoyed by a stream of Challengers who came through the door. The chap in the picture below has a fascinating life, globetrotting with incredible entertainers, but still choosing to spend the larger chunk of his holiday walking across Scotland with the rest of the bewildered and bedraggled. There's something about the TGO Challenge - it attracts some amazing characters.

ANOTHER CHALLENGER WITH A FASCINATING LIFE, AT MAR LODGE

All good things come to an end and there's nothing for it but to shoulder the packs and head out into the weather again to make Braemar.

LOOKING BACK OVER THE DEE TO MAR LODGE

Our good intention of heading straight to our excellent B&B in Braemar went out the window as we entered the portals of the fabulous, newly refurbished Fife Arms Hotel. More on the refurbishment later, but I love the humorous take on Scotland's heritage so beloved by VisitScotland and their ilk. The main bar has been renamed the Flying Stag and I love what they've done!.


LORD ELPUS WITH THE FIRST OF A FEW THIRST QUENCHERS

Eventually we did find our B&B, and once again Andy & David had chosen to let the Two at the Back have the better of the choice of rooms. However, time was getting on and after a desperate search for somewhere to have dinner, the wonderful Fiona at the Braemar Lodge Hotel came up trumps again, and Lord E and I did it in some style. Thank you, again, Fiona.


The weather had been poor all day, however the dramatic cloud draped land we covered and the people we met today made it a day to treasure.


Here's a little more bliss from the blissful Lucia Popp: